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Acoustic Neuroma Association of Canada
Main contact: Melanie Sexsmith, National Coordinator
163-171A Rink Street
Peterborough, ON
K9J 2J6
Tel: 705-750-1550/800-561-2622
Email: info@anac.ca
Website: www.anac.ca
Canadian AIDS Society
Tel: 800-499-1986
Website: www.cdnaids.ca
Canadian Foundation for AIDS Research
901-165 University Avenue
Toronto, ON
M5H 3B8
Tel: 416-361-6281/800-563-2873
Website: www.canfar.ca
Addictions Ontario
Main contact: Catherine Hardman, President
P.O. Box 21022, University Mall
Windsor, ON
N9B 3T4
Tel: 519-962-9317/1-800-965-3307
Email: info@addictionsontario.ca
Website: www.addictionsontario.ca
ALS Society of Canada
Main contact: David Cameron, President and CEO
300-265 Yorkland Boulevard
Toronto, ON
M2J 1S5
Tel: 800-267-4ALS
Email: dc@als.ca
Website: www.als.ca
Alzheimer Society of Canada
Nationwide network of services for those affected with Alzheimer’s and their families.
20 Eglinton Avenue W., Ste. 1600
Toronto, ON
M4R 1K8
Tel: 416-488-8772/800-616-8816
Email: info@alzheimer.ca
Website: www.alzheimer.ca
The Arthritis Society
Includes the Arthritis Society, the Canadian Rheumatology Association, the Canadian Arthritis Network, arthritis health care providers, and the Cochrane Musculoskeletal Group
Main contact: Steven McNair, CEO and President
1700-393 University Avenue
Toronto, ON
M5G 1E6
Tel: 416-979-7228/800-321-1433
Email: info@arthritis.ca
Website: www.arthritis.ca
Arthritis West Island Self Help (AWISH)
Main contact: Paulette Zeilinski, President
103-750 Dawson Avenue
Dorval, QC
H9S 1X1
Tel: 514-631-3288
Email: arthritis@awishmontreal.org
Canadian Arthritis Patient Alliance
Main contact: Anne Foulliard
R.R.1, 963 Kingsburg Road
Rose Bay, NS
B0J 2X0
Tel: 902-766-0104
Email: afouillard@eastlink.ca
Website: www.arthritispatient.ca
Asthma Society of Canada
Main contact: Christine Hampson, President and CEO
2306-4950 Yonge Street
Toronto, ON
M2N 6K1
Tel: 416-787-4050/866-787-4050
Email: champson@asthma.ca
Website: www.asthma.ca
Behoets Canada
An organization supporting those who have Behoet's, a multi-system, life long vascular disease that can attack any part of the body where there is blood supply
Email: gerry@behcetscanada.com
Website: www.behcetscanada.com
Bone Marrow Association
Main contact: Brian Bedard, President/Chair
3064 Fairlane Crescent
Windsor, ON
N8W 4Y6
Tel: 519-564-4119
Email: bbedard@givemarrow.net
Website: www.givemarrow.net
Canadian Breast Cancer Foundation
A charitable organization which raises money to advance research, education, diagnosis and treatment
Main contact: Sandra Clegg, Media Representative
375 University Avenue, 6th Floor
Toronto, ON
M5G 2J5
Tel: 416-596-6773/1-800-387-9816
Email: sclegg@cbcf.org
Website: www.cbcf.org
Canadian Cancer Society (National Office)
Community-based organization aimed at the eradication of cancer and enhancement of the quality of life for people living with the condition
Main contact: Megan McDonald, Information Policy Manager
200-10 Alcorn Avenue
Toronto, ON
M4V 3B1
Tel: 416-961-7223
Email: ccs@cancer.ca
Website: www.cancer.ca
Cancer Recovery Foundation
A non-profit cancer resource and support organization that provides survival and preventative techniques and offers cancer survival kits
Website: www.cancerrecovery.ca
Colon Cancer Canada
Intended to bring all the victims of colon cancer together to share ideas, feelings, hopes and resources. Features related medical news and fundraising campaigns.
Main contact: Bunnie Schwartz, President
202A-5915 Leslie Street
Toronto, ON
M2H 1J8
Tel: 416-785-0449
Email: info@coloncancercanada.ca
Website: www.coloncancercanada.ca
Colorectal Cancer Association of Canada
Site provides information, news and support resources about colorectal cancer, the third most common form of cancer in Canada
Main contact: Barry Stein, President
204-60 St. Clair Avenue E.
Toronto, ON
M4T 1N5
Tel: 416-920-4333
Email: barrys@colorectal-cancer.ca
Website: www.ccac-accc.ca
Kidney Cancer Canada
Main contact: Tammy Udall, Executive Director
880 Alwater Avenue
Mississauga, ON
L5E 1M1
Tel: 519-620-7241/1-866-598-7166
Email: tammyudall@kidneycancercanada.org
Website: www.kidneycancercanada.org
Leukemia and Lymphoma Society
Tel: 800-955-4572
Website: www.leukemia-lymphoma.org
Lung Cancer Canada
1896A Avenue Road
Toronto, ON
M5M 3Z8
Tel: 416-785-2905/888-445-4403
Email: info@lungcancercanada.ca
Website: www.lungcancercanada.ca
Lymphadema Foundation (Canadian)
Charitable organization raising money for research and education into conditions affecting the lymphatic system
8 Silver Avenue
Toronto ON
M6R 1X8
Email: info@lymphovenous-canada.ca
Website: www.lymphovenous-canada.ca
Lymphoma Foundation Canada
Main contact: Karen van Rassel, Executive Director
16-1375 Southdown Road, #236
Mississauga, ON
H3Z 3G3
Tel: 905-822-5135/866-659-5556
Email: info@lymphoma.ca
Website: www.lymphoma.ca
Myeloma Canada
P.O. Box 326
Kirkland, QC
H9H 0A4
Tel: 514-570-9769/888-798-5771
Email: info@myelomacanada.ca
Website: www.myelomacanada.ca
Ovarian Cancer Canada
Main contact: Elizabeth Ross, CEO
101-145 Front Street E.
Toronto, ON
M5A 1E3
Tel: 416-962-2700/877-413-7970
Email: eross@ovariancanada.org
Website: www.ovariancanada.org
Prostate Cancer Research Foundation of Canada
145 Front Street E., #306
Toronto, ON
M5A 1E3
Tel: 416-441-2131/888-255-0333
Email: info@prostatecancer.ca
Website: www.prostatecancer.ca
Wellspring Cancer Support Centres
Network of cancer support centres providing programs, educational resources and training for cancer patients and their families
81 Wellesley Street E.
Toronto, ON
M4Y 1H6
Tel: 416-961-1928/877-499-9904
Website: www.wellspring.ca
Canadian Burn Foundation
Provides programs and support for burn survivors across Canada and the world
Main contact: Barry Peachy, President
2051-47 Street
Edmonton, AB
T6L 2V5
Tel: 780-448-9025/877-448-9025
Email: info@canadianburnfoundation.org
Website: www.canadianburnfoundation.org
Canadian Celiac Association
A national organization dedicated to providing services and support to persons with Celiac Disease and dermatitis herpetiformis through programs of awareness, advocacy, education, and research
5170 Dixie Road
Mississauga, ON
L4W 1E3
Tel: 905-507-6208/800-363-7926
Email: info@celiac.ca
Website: www.celiac.ca
Ontario Federation for Cerebral Palsy
Main contact: Veronica Reynolds
104-1630 Lawrence Avenue W.
Toronto, ON
M6L 1C5
Tel: 416-244-9686/877-244-9686
Email: veronica@ofcp.on.ca
Website: www.ofcp.on.ca
Cerebral Palsy Support Foundation of Canada
Main contact: Frank Allen, COO
10 Bassett Boulevard., Unit 35
Whitby, ON
L1N 9C3
Tel: 905-259-3421
Email: coo@cpsc.ca
Website: www.cpsc.ca
Crohn’s and Colitis Foundation
600-60 St. Clair Avenue E.
Toronto, ON
M4T 1N5
Tel: 416-920-4135
Website: www.ccfc.ca
Cystic Fibrosis Foundation (Canadian)
Tel: 800-378-2233
Website: www.cysticfibrosis.ca
Canadian Diabetes Association
1400-522 University Avenue
Toronto, ON
M5G 2R5
Tel: 800-226-8464
Email: info@diabetes.ca
Website: www.diabetes.ca
Canadian Down Syndrome Society
A support group for families of children with Down Syndrome
Main contact: Krista Flint, Executive Director
811-14 Street NW
Calgary, AB
T2N 2A4
Tel: 403-270-8500/800-883-5608
Email: kflint@cdss.ca
Website: www.cdss.ca
The Eczema Society of Canada
A resource maintained by parents of kids with eczema; provides information about treatment for patients, families and their doctors
Main contact: Amanda Cresswell-Melville, Executive Director
417 The Queensway S.
Keswick, ON
L4P 2C4
Tel: 905-535-0776
Email: director@eczemahelp.ca
Website: www.eczemahelp.ca
International Endometriosis Association
Tel: 800-426-2363
Website: www.endometriosisassn.org
Epilepsy Canada
336-2255B Queen Street E.
Toronto, ON
M4E 1G3
Tel: 877-734-0873
Email: epilepsy@epilepsy.ca
Website: www.epilepsy.ca
National ME/FM Action Network
Main contact: Lydia Nielson, CEO
512-33 Banner Road
Nepean, ON
K2H 8V7
Tel: 613-829-6667
Website: www.mefmaction.net
Kitchener-Waterloo Fibromyalgia Support Group
Main contact: Sandra Gartz, Leader
Email: kwfibromyalgia@gmail.com
Website: www.kwfibromyalgia.piczo.com
Fibromyalgia Association of Regina
Main contact: Elaine Torrie
Email: e.torrie@sasktel.net
Heart and Stroke Foundation of Canada
Provides patients and families with health and lifestyle information, tips, and trends on heart disease and stroke-related conditions
Main contact: Jane-Diane Fraser, Communications Coordinator
1402-222 Queen Street
Ottawa, ON
K1P 5V9
Tel: 613-569-4361
Email: jfraser@hsf.ca
Website: www.heartandstroke.ca
Canadian Hemophilia Society
Main contact: David Page, Executive Director
505-625 President Kennedy Avenue
Montreal, QC
H3A 1K2
Tel: 514-848-0503/800-668-2686
Email: dpage@hemophilia.ca
Website: www.hemophilia.ca
Huntington Society of Canada
505-625 President Kennedy Avenue
Tel: 800-998-7398
Website: www.hsc-ca.org
The Kidney Foundation of Canada
Main contact: Niloufer Besania, President
300-5165 Sherbrooke Street W.
Montreal, QC
H4A 1T6
Tel: 514-369-4806/800-361-7494
Email: info@kidney.ca
Website: www.kidney.ca
Leukemia Research Fund of Canada
Tel: 800-268-2144
Website: www.leukemia.ca
Canadian Liver Foundation
1500-2235 Sheppard Avenue E.
Toronto, ON
M2J 5B5
Tel: 416-491-3353/800-563-5483
Email: clf@liver.ca
Website: www.liver.ca
The Lung Association (Canadian)
Main contact: Nora Sobolov, President
300-1750 Courtwood Crescent
Ottawa, ON
K2C 2B5
Tel: 613-569-6411/1-888-566-LUNG (5864)
Email: info@lung.ca
Website: www.lung.ca
Lupus Canada
Tel: 800-661-1468
Multiple Sclerosis Society of Canada
Provides information about the disease, progress in MS research, available services, details about fund raising events and donation opportunities
Main contact: Lynn Lacohee, Executive Director
700-175 Bloor Street E., North Tower
Toronto, ON
M4W 3R8
Tel: 416-967-3032
Email: l.laccohee@mssociety.ca
Website: www.mssociety.ca
Muscular Dystrophy Canada
A national voluntary agency committed to eliminating neuromuscular disorders and alleviating the associated distress
Main contact: Catherine Sherrard, CEO
900-2345 Yonge Street
Toronto, ON
M4P 2E5
Tel: 866-MUSCLE-8
Email: info@muscle.ca
Website: www.muscle.ca
Canadian National Institute for the Blind
Tel: 613-563-4021
Website: www.cnib.ca
Osteoporosis Society of Canada
Tel: 800-463-6842
Website: www.osteoporosis.ca
Parkinson Society Canada
Main contact: Joyce Gordon, CEO
Tel: 416-227-9700/800-565-3000
Email: communications@parkinson.ca
Website: www.parkinson.ca
Canadian Organization for Rare Disorders
Education and support, providing information on thousands of rare disorders and advocating for funding and research. Offers news, membership, and contact details.
Main contact: Durhane Wong-Rieger, President
600-151 Bloor Street W.
Toronto, ON
M5S 1S4
Tel: 416-969-7464/877-302-7273
Email: durhane@sympatico.ca
Website: www.raredisorders.ca
Spina Bifida and Hydrocephalus Association of Ontario
Provides information, resources, and support for people with spina bifida or hydrocephalus and their families
Main contact: Joan Booth, Executive Director
555 Richmond Street W.
P.O. Box 103, Suite 1006
Toronto, ON
M5V 3B1
Tel: 416-214-1056/800-387-1575
Email: jbooth@sbhao.on.ca
Website: www.sbhao.on.ca
Canadian Spinal Research Organization
Dedicated to the improvement of the physical quality of life for persons with a spinal cord injury and those with related neurological deficits, through targeted medical and scientific research
555 Richmond Street West
P.O. Box 103, Suite 1006
Tel: 800-361-4004
Website: www.csro.com
Thalidomide Victims Association of Canada
An organization of approximately 125 victims of the drug thalidomide. It provides non-monetary programs, services, and advocacy for its members.
Main contact: Mercedes Benegbi, Executive Director
Centre Commercial Joseph Renaud
211-6830 Boul. Joseph Renaud
Montreal, QC
H1K 3V4
Tel: 514-355-0811
Email: mercedes.acvt@sympatico.ca
Website: www.thalidomide.ca
Trigeminal Neuralgia Association of Canada (TNAC)
1602 Walton Street
Cornwall, ON
K6H 1W2
Email: president@tnac.org
Turner’s Syndrome Society of Canada
Non-profit charitable organization that provides support services for individuals with TS and their families; provides up-to-date medical information to families, physicians, and the general public
323 Chapel Street
Ottawa, ON
K1N 7Z2
Tel: 613-321-2267
Website: www.turnersyndrome.ca
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